Helen A. Kellar Institute for Human disAbility - George Mason University
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The Kellar Institute for Human DisAbilities (KIHd) is an interdisciplinary campus-based organization focusing on improving the lives and productivity of children and adults with disabilities. KIHd combines the resources of the university with local, state, regional, national, public, and private sector agencies and organizations to develop products, services, and programs for persons with disabilities.

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SEMINAR: “DS Connect – The Down Syndrome Registry”

SEMINAR: “DS Connect – The Down Syndrome Registry”

April 4, 2014

Come and learn everything you need to know about the recently launched NIH Down Syndrome Registry on April 30, 2014.


April 30, 2014 - 7.30pm-9.00pm
Johnson Center, Room D

The speakers, Dr. Melissa Parisi and Dr. Sujata Bardhan, will talk about “DS-Connect: The Down Syndrome Registry,” which was launched in September 2013.

The main goal of the registry is to connect people with Down syndrome with researchers, by providing medical data.  These data will be kept private and secure. 

The hope is that, eventually, this registry will speed up clinical research on Down syndrome and provide treatments and improve the quality of life for individuals with the condition. 

The speakers will also briefly go over the history of this effort and why NIH is involved, and answer questions about how to register and the interesting data the participants will be able to see.

Please RSVP to: hconover@gmu.edu or afulcher@gmu.edu if you plan to attend.